Tuesday, February 22, 2011

It's a read your fortune cookie kind of day.....

I've been struggling with how to muster enough courage to pull John off of medications that do not relate to Lewy Body. These would be the medications related to Orthostatic Hypotension. This has been the culprit responsible for more trouble earlier on in his journey into hell with Lewy Body.

Today, I finally did it. John's daughter came to be sure I didn't lose my resolve. I asked for a hospice eval and to have his medications revisited. We're moving from palliative to hospice.

I have always felt doctors were wrong to prolong life when there was no quality of life and no hope. Now the shoe's on the other foot and I must make a decision.

John has been quite clear in wanting to die. He started saying this a lot since last summer. I believe him to be quite lucid when he says it. He said it again last night.

Two nights ago was a very tough night. According to my lawyer, if I were to put John on medicaid, I would have to cash in $86K of my retirement funds - which means all of it when you include penalties and taxes. I decided not to do that. I would bring him home before I allowed that to happen. John would not approve.

But yesterday morning, my "Message from God" (FB app) said this:

"On this day of your life, Susan, we believe God wants you to know...that today is a big day for you.
Yes, today. Keep your eyes open for a message. It might come in a shape of a bird flying overhead, or a graffiti on a wall, or a phrase said by a passerby, or... Whatever shape it has, this message has been trying to reach you for years, and today is finally the day. Keep your senses open. "

How do these apps know? Obviously, they're like fortune cookies or horoscopes. You can read whatever you want to in them. But, I think John was the messenger. He was giving me one final ok....

God is watching over the two of us. Make no mistake. When things seem to be falling apart, I feel His strength in ways you cannot mistake. I'm not somebody who reads the Bible over and over again. I don't quote verses from the Bible. But I do know that God is giving me the strength and courage I need. He sends it in so many forms and it is like a security blanket laying over me.


1 comment:

  1. HUGS Susan just know i'm hugging you while you go through this and that i am keeping you both in my prayers

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